A Life Lived Vividly Series; What Is Psychosis?

A Life Lived Vividly

Welcome to the start of a new series of posts on Stumbling Mind, dedicated to psychosis. I’ll be sharing the lived experiences of others, discussing delusions and what they mean and describing some of the more surreal occurrences I’ve had when hearing voices.

In this post, I’ll start at the beginning; what is psychosis?

Psychosis happens amongst people with the mental illnesses schizophrenia, schizoaffective disorder, post partum psychosis, and sometimes those with bipolar disorder and severe depression. Psychosis is experienced in two different ways; hallucinations and delusions.

Hallucinations are when a person hears, sees, smells, tastes or feels something that isn’t really there. It’s a sensory experience that happens without any outside stimuli. The world around them is perceived differently to everyone else, with others not being able to see, hear, or feel what they can. The whole experience feels very real to the person experiencing it. One of the most common hallucinations is hearing sounds and voices.

Those with psychosis often lose touch with reality and suffer delusions. Delusions are when you believe wild theories and beliefs that often have no evidence based in fact. People may have what’s called ‘delusions of grandeur’ where they may feel like the most important person in the world. They may believe they have powers or intelligence above and beyond anyone else.

Paranoia can also be a part of delusions. The individual feels threatened by an outside source that wants to hurt or control them in some way.

People can suffer from one or both experiences. Psychosis can be frightening, bewildering and surreal. It can be incredibly isolating and can make people feel distrustful and nervous. However, it isn’t always negative and some people find it to be a positive, life affirming experience. The one thing to take from this is that each individual has their own unique experience.

Psychosis ranges from being a one off experience, to something people encounter regularly. For me, I experience short episodes of psychosis when I’m either in a manic or depressive bipolar episode. You can read more about my experiences in this journal entry

Over the course of the ‘Life Lived Vividly’ Series, I will try and cover as much of the above as I can and in more detail. I want to shine a light on this often misunderstood condition in a sensitive way and to create a safe place for discussion. You can already find several posts about this on Stumbling Mind in the Psychosis section of the blog. Anything else you’d like me to touch on during the series? Then please let me know in the comments!

Don’t let the Worry of Being Ill Ruin A Holiday

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Living with mental illness is tricky. It’s a sneaky bastard that creeps up on you when you least expect it. Often when we relax, mental illness barges its way into our lives and tries to take over. A prime example of this is when we go on holiday. We can’t always be 100% sure we will be well when we plan and book a holiday, it’s a risk anyone with mental illness takes. We can plan meticulously but still have a mental health crises. Or like me, forget something vital to staying mentally well.

Last year my husband and I went on holiday to Devon. It started off well, with us going to the beach and going for long walks in the woods around where we were staying. We’d relaxed and spent long evenings drinking, chatting and enjoying each others company. Three days in, I started feeling strange. I felt rundown, almost like I was coming down with the flu. I realised I’d run out of medication. Not only that, but it dawned on me I hadn’t taken medication at all since we’d been in Devon.

Shit, shit, shit was my initial reaction. The damage had already been done, and I knew by the time I’d organised emergency meds the holiday would be pretty much over. I had the shakes, a temperature, I felt nauseous constantly and felt dizzy and exhausted. I spent the rest of our trip in bed or under a blanket on the sofa, far too ill to do anything else. I felt incredibly guilty, like I’d let down my partner and ruined our time away together. It was our only holiday away, our only week just us together and supposed to be a week where we could totally relax.

This was when it all went wrong, and I let my anxieties about not enjoying my holiday ruin it for me. I have coped better, I’ve planned better and I was annoyed at myself. Being mentally unwell on holiday doesn’t mean it’s totally ruined. If you plan well and go in with a realistic outlook, you can still have a great time.

A few years ago we went to Croatia for a week away. We were staying near Dubrovnik, on a tiny island called Kolocep. I had been struggling with a persistent depressive mood leading up to the holiday. I was nervous, on edge. What if i was too ill to do anything I’d planned? Before leaving, I told myself so what if I’m ill? I’m there ultimately to relax. If I have a difficult day there’s nothing wrong with taking a break from our plans. I hadn’t scheduled to go somewhere or activities every single day. There were days when I wanted to just lay on the beach or sit by the pool and read. Trips could be moved. Personally I like to plan a trip myself, rather than be led by a tour guide. This gives me the freedom to see how I feel each morning and decide what we’re going to do there and then.

It ended up being one of the most memorable holidays I’ve ever been on. I didn’t allow the expectation that I must be on top form and enjoying myself every single minute of every day ruin my time away. I was depressed, but I still managed to explore the old city of Dubrovnik, go kayaking and discover hidden coves around the islands. I accepted the fact that I would have bad days, and there were a couple of afternoons when I went back to my room and went to bed or simply just sat and had much needed time alone. I didn’t feel guilty for doing. Most importantly, it didn’t ruin my holiday.

In a couple of weeks, I’m heading off to Cape Verde, for some much needed relaxation. This time I’m going with a much more positive frame of mind.

My Hearing Voices Journal Entry 2

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Yesterday I had a an episode of psychosis. It came in the form of auditory hallucinations, as it does with me. I’ve journaled my experiences before in the post My Hearing Voices Journal and felt as I sat in bed last night trying to sleep, but too anxious to do so, it was time to journal my feelings once again. It started as I finished my shift at work. I could hear a murmuring coming from all around me. These are my initial thoughts on the experience.

Hearing murmurs is something I experience often with psychosis. It’s frustrating more than anything. It’s like sitting in a busy restaurant or bar. As I’m a people watcher and yes, very nosy, I like to listen to snippets of people’s conversations. I find it fascinating listening to how people interact with one another. These murmurs are like not quite catching the conversation of the people at the table next to you. even with your best efforts to strain to hear what is being said. All you can hear is a low murmur.

It’s a constant background noise, like the hiss of an untuned radio, but I can’t turn it off or find another station. I’m stuck with the same incessant, nonsense sounds. The noise/murmuring follows me; it doesn’t dissipate if I move. That’s how I know it isn’t real, that it isn’t coming from an outside source, but from inside my own mind. Trying to ‘turn off’ the noise makes me feel like I’m losing my mind. I’ll try to convince myself it isn’t a hallucination, pacing back and forth with more and more urgency looking for the source of the sounds. I begin to talk to myself, to firstly come up with a logical conclusion and secondly to calm down. It doesn’t work and I can feel the frustration rising. Why is this happening to me? Is it too much to ask for to just be normal, whatever that is. The noise after an hour or so, disappears, without my noticing. I’d grown accustomed to it and over the years during an episode I’ve learnt to carry on as normal when I’m out in public as much as I can.

Now it’s gone I feel on edge. I know I’ll feel this way for the next few days. What if a more sinister voice presents itself? What if it happens when I’m alone and there’s no one to comfort me and help me through it?

I’ve gone to bed, but I can’t sleep. I feel too emotional to sleep. I could burst into tears at any moment. I can feel my heart beating in my chest. Sharp pains streak across my chest, which suggests the beginning of a panic attack. All of this because I heard some murmuring. Psychosis fucks with your head in so many ways. It’s not just the actual experience, but the anxiety and the real fear that follows. I feel tense and uneasy like something or someone unknown is watching me, ready to shout and attack. I don’t like the dark. I was never afraid of the dark when I was younger, in fact I was a pretty fearless child. When you begin to hear auditory hallucinations, especially when you hear that first voice come out of nowhere in pitch darkness it is unbelievably terrifying. The fear I feel, the total vulnerability leaves me in a state of shock. Now I’m afraid of the dark. What if, just if, that voice is real this time. That there really is someone in my room whispering in my ear “I see you.” I will hear voices from what feels like all around me and for all I know they are very real. Surrounded by a wall of voices it’s easy to start to imagine what they look like. Eyes open, they start to adjust to the low light and play tricks on me. That shadow in the corner starts to form into the shape of a person, towering over where I lay.

All of this is circling my mind, so how could I possibly sleep? I know what I need to do. I need to get up out of bed and out into the light.

As I’ve made clear before in the post I’ll Keep Talking About Psychosis Whether It’s Relatable Or Not I won’t stop writing about my experiences of auditory hallucinations. It’s cathartic and journalling my experiences helps me make sense of them. If you know someone who is struggling with hearing voices, my post How to Help Someone When They’re Hearing Voices could be helpful. There’s also plenty of information out there, and I personally found MIND’s website to be full of helpful information.